Live em prol do menino Raul será realizada em Ribeirão Bonito

Live em prol do menino Raul será realizada em Ribeirão Bonito
(Foto: Divulgação)

Denominada de Quintal Sertanejo, evento busca colaborar no tratamento do garoto que sofre de Atrofia Muscular Espinhal (AME) – tipo I

RB Na Rede

(Foto: Divulgação)

Ribeirão Bonito será o palco de mais uma ação solidária no dia 11 de junho, quinta-feira, a partir das 17h. A Live Quintal Sertanejo, será realizada no município, e tem como objetivo colaborar no tratamento do garoto Raul, que sofre de Atrofia Muscular Espinhal (AME) – tipo I, e ajudar as instituições da cidade.
Como devido a pandemia os eventos estão suspensos para não ter aglomeração de pessoas, a ideia foi de fazer uma transmissão pela internet, por meio das redes sociais. A animação da Live Quintal Sertanejo será por conta de Matheus Bianco.
Quem já quiser ir ajudando o menino Raul, que reside em Santa Lúcia (SP), pode fazer uma doação pelo link: https://www.vakinha.com.br/vaquinha/ame-raul.
O link da Live Quintal Sertanejo é: https://www.youtube.com/watch?v=TWIQfJDWRpg&feature=youtu.be.

Sobre o Raul (Depoimento da família)

(Foto: Divulgação)

Raul é um anjinho que chegou em nossas vidas em dezembro de 2019. Uma criança linda, tranquila, que nos encantou desde o primeiro momento.
Com três meses, percebemos um chiado em sua respiração e notamos que ele estava perdendo rapidamente alguns movimentos das perninhas. Logo, corremos ao médico para saber o que estava acontecendo.
Naturalmente, num primeiro momento, pensamos em vários problemas respiratórios comuns em recém-nascidos, mas a falta de movimento nos preocupava — e muito!
De imediato o médico suspeitou que poderia ser algo mais sério. Entramos em pânico e iniciamos uma série de exames. Foram dias de muita tensão, medo, angústia e desespero.
Depois de muitos exames e algumas semanas de espera, veio o diagnóstico: Atrofia Muscular Espinhal (AME) – tipo I, uma doença genética degenerativa, que impede o corpo de fazer atividades vitais, como respirar, por exemplo.
Descobrimos que existe um remédio que pode salvá-lo: o Zolgensma. Trata-se do remédio mais caro do mundo: 2 milhões de dólares. Isso, sem contar os custos com despesas de viagem, pois o tratamento é realizado nos Estados Unidos por enquanto.

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  182. When I initially commented I seem to have clicked the -Notify me when new comments are added- checkbox and now every time a comment is added I get four emails with the same comment. Perhaps there is a way you are able to remove me from that service? Cheers!

  183. After I initially left a comment I seem to have clicked on the -Notify me when new comments are added- checkbox and now each time a comment is added I get 4 emails with the exact same comment. Is there a way you can remove me from that service? Thanks a lot!

  184. Iím impressed, I must say. Rarely do I encounter a blog thatís both equally educative and entertaining, and without a doubt, you have hit the nail on the head. The problem is something that not enough folks are speaking intelligently about. I’m very happy I came across this in my hunt for something regarding this.

  185. Iím amazed, I have to admit. Seldom do I come across a blog thatís both equally educative and interesting, and let me tell you, you have hit the nail on the head. The problem is something too few people are speaking intelligently about. I am very happy I found this during my search for something concerning this.

  186. The next time I read a blog, Hopefully it doesn’t fail me just as much as this one. After all, I know it was my choice to read, but I genuinely believed you would have something helpful to talk about. All I hear is a bunch of crying about something you could possibly fix if you were not too busy seeking attention.

  187. Having read this I thought it was very informative. I appreciate you taking the time and energy to put this content together. I once again find myself personally spending a lot of time both reading and commenting. But so what, it was still worth it!

  188. You are so cool! I do not believe I have read something like this before. So wonderful to discover another person with some unique thoughts on this issue. Seriously.. thank you for starting this up. This website is one thing that is needed on the web, someone with some originality!

  189. An outstanding share! I’ve just forwarded this onto a colleague who has been conducting a little research on this. And he actually ordered me breakfast simply because I discovered it for him… lol. So allow me to reword this…. Thank YOU for the meal!! But yeah, thanks for spending time to talk about this topic here on your internet site.

  190. You are so cool! I don’t think I have read something like this before. So great to discover another person with a few genuine thoughts on this subject matter. Really.. thank you for starting this up. This site is one thing that is needed on the web, someone with some originality!

  191. The very next time I read a blog, Hopefully it won’t fail me just as much as this one. I mean, Yes, it was my choice to read, nonetheless I really thought you’d have something interesting to talk about. All I hear is a bunch of crying about something you can fix if you were not too busy looking for attention.

  192. Howdy! This post couldn’t be written any better! Looking through this article reminds me of my previous roommate! He continually kept preaching about this. I most certainly will forward this information to him. Pretty sure he will have a great read. Thank you for sharing!

  193. Iím amazed, I must say. Seldom do I come across a blog thatís both educative and entertaining, and let me tell you, you have hit the nail on the head. The problem is something that not enough folks are speaking intelligently about. Now i’m very happy I stumbled across this during my hunt for something relating to this.

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  199. An outstanding share! I’ve just forwarded this onto a co-worker who has been doing a little research on this. And he actually bought me lunch due to the fact that I discovered it for him… lol. So allow me to reword this…. Thanks for the meal!! But yeah, thanks for spending the time to discuss this topic here on your blog.

  200. I must thank you for the efforts you’ve put in penning this blog. I really hope to check out the same high-grade content by you later on as well. In fact, your creative writing abilities has encouraged me to get my very own website now ;)

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  204. After I originally left a comment I appear to have clicked the -Notify me when new comments are added- checkbox and from now on every time a comment is added I get four emails with the exact same comment. Perhaps there is an easy method you can remove me from that service? Kudos!

  205. Iím impressed, I must say. Seldom do I come across a blog thatís both educative and entertaining, and let me tell you, you have hit the nail on the head. The issue is something too few men and women are speaking intelligently about. I am very happy I stumbled across this during my hunt for something concerning this.

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  210. Having read this I thought it was really informative. I appreciate you finding the time and energy to put this information together. I once again find myself spending a lot of time both reading and commenting. But so what, it was still worth it!

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